Rare Disease Day 2014
In the U.S., rare diseases are those that affect fewer than 200,000 people. Of the approximately 7,000 rare diseases, most have genetic origins and affect children and young adults. Most doctors are unable to diagnose rare diseases, and for those that can be identified, fewer than 500 have approved treatments.

One such rare disease, Hereditary Inclusion Body Myopathy (HIBM), causes progressive muscle weakness and wasting. Since 1997, Drs. Daniel and Babak Darvish, brothers who both have HIBM, have dedicated their lives to understanding, diagnosing and finding a cure for this disease. They founded HIBM Research Group, Inc. (HRG), a 501(c)(3) non-profit organization, whose mission includes curing HIBM and promoting muscle regeneration. Because of their efforts, this rare disease now has ample information, offering easy and fast diagnosis and several treatments being tested in patients. A cure is now within reach!

Help Find a Cure
Agility Clinical, Inc. is hosting a silent auction for HIBM on February 27, 2014.

Sanford ConsortiumWe hope that you will consider sponsorship, the donation of an item, and/or monetary contribution for this special event. The proceeds from all donations will be submitted to HRG and will be used to support the mission of the Foundation.

This event will be held at the Sanford Consortium for Regenerative Medicine, and will be preceded by a seminar titled, Overcoming Challenges in Orphan Product Development that is sponsored by Agility Clinical and Biocom. Last year’s seminar was sold out and was attended by decision makers and scientists from the Biotech Community.

Your tax-deductible contribution, no matter how big or small, will help HRG a great deal. HRG is a non-profit 501(c)(3) organization, and contributions are tax deductible to the maximum extent allowed by IRS regulations.

Thank you for supporting our efforts to make a difference!

 

"It's no longer about finding the treatment.
It's about funding the treatment."




Or download and mail the Donation Form to:

Agility Rare Diseases
6005 Hidden Valley Road
Suite 170
Carlsbad, CA 92011